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Essay / Research Paper Abstract
This 8 page paper examines how parents and families cope with disease. Spina Bifida is described and discussed in depth. Bibliography lists 7 sources.
Page Count:
8 pages (~225 words per page)
File: RT13_SA716sb.rtf
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Unformatted sample text from the term paper:
children with either a disability or chronic disease often worry about the challenges caregivers will face. Sometimes, the disability is prominent while other times it is not. For parents of
children with spina bifida, the challenges are often emotional and psychological, but there are physical aspects of taking care of these children as well. While some children with SB do
walk rather well, others are wheelchair bound. The problems that parents face when raising children with this disease are often related to fears for the future as well as
difficulties coping with the requirements of daily living. Children with spina bifida need a lot of help coping with the symptoms that SB can bring such as bladder and bowel
problems and paralysis that sometimes occurs. The fact that SB comes in many forms-mild with few or no symptoms to severe with significant paralysis-suggests that each case is different. Obviously,
each family is different as well. Hence, much of the information gleaned on this subject is applicable dependent upon circumstances. Each spina bifida family is unique.
II. Spina Bifida (SB) Spina Bifida or SB is a Neural Tube Defect (Bloom & Selijeskog, 1988). One type of SB is called spina bifida cystica, which is
something that signifies a number of conditions also known as myelodysplasia, myelomeningocele, and meningomyelocele (Bloom & Selijeskog, 1988). These names represent a birth defect where a part of the spinal
cord and its nerves never developed normally (Bloom & Selijeskog, 1988). Spina bifida is something that is present at birth. Also, it may even be discovered before the baby is
born. With low risk pregnancies, an intact cerebral anatomy suggest that spina bifida is not present (Pilu, 1999). Diagnosis in utero is made by examining the skull and brain (Pilu,
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