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Essay / Research Paper Abstract
A 15 page research paper that examines the law concerning genetic testing and whether or not health insurers can use test results that show that an individual has a genetic tendency towards a disease as grounds for canceling or not providing coverage. The writer particularly focuses on the comprehensive law enacted by the state of New Jersey. Bibliography lists 10 sources.
Page Count:
15 pages (~225 words per page)
File: D0_khgentst.rtf
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Unformatted sample text from the term paper:
a gene for a disfiguring and potentially lethal disease, neurofibromatosis (Shulman 16). Although Keifes son suffers from the symptoms of the disorder-typified by multiple tumors-Keife, himself, was symptom free at
the time that his health insurance was cancelled (Shulman 16). Keife lost his health insurance, not because he had a disease, but purely because he carried the genetic possibility that
he might develop it at some future time. Likewise, in New Hampshire, Jamie Stephenson and her family lost their health insurance benefits because two of her four sons were
diagnosed as having "fragile-x syndrome" (Schulman 16). This disease is caused by an alteration of a gene on the x chromosome that has been associated with mental retardation (Schulman 16).
After searching for three years, Stephenson was able to able health coverage for her family through the National Association for the Self-Employed (Schulman 16).
As coordinator of the Fragile-X Center for Northern New England, Stephenson says that she continues to hear of multiple cases were insurance for families with fragile-x has been
curtailed or canceled (Shulman 16). In both of these cases, the individuals lost their health insurance benefits because they possessed the genetic potential to have a disease, rather then the
disease itself. ` These two cases are not rare. They represent a prevailing concern of legislatures across the country. Modern science has made great strides in being able to determine
from genetic testing whether or not individuals have inherited a genetic tendency toward certain diseases. Legislative interest in regulating the uses of this genetic information is at an all time
high. Between 1975 and 1989, there was absolutely no legislation introduced at the state or Congressional level pertaining to this issue (Wertz State.htm). Beginning in 1989, there has
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